I Lost My Daughter To A Rare Disease, But It’s What I Did After That Surprises People The Most

When my husband and I adopted our daughter Dalia from Guatemala, nearly 18 years ago when she was six months old, there was so much I didn’t know.

I didn’t know how to get her to sleep when I was desperate for a nap. I couldn’t tell if her crying meant she was hungry or gassy or teething. I wasn’t sure how she’d respond to our dog, who was three times her size, or why the first sounds she made sounded more like grunting than cooing.

I didn’t know it would take me less than a minute to fall in love with her when she was placed in my arms or that I’d love her more with each passing day when I thought I already loved her as much as humanly possible.

And I didn’t know she had MERRF syndrome, a rare degenerative mitochondrial disease.

Source link

Back to top button